Our Mission

To raise awareness for and advocate on behalf of persons with bleeding disorders and their families; provide education and supportive services; and promote ongoing research to improve the quality of life for those affected.

Our Vision

To be recognized as a leading organization providing valued services; as ambassadors of public outreach to enlighten and foster an understanding of what matters most to those affected by hemophilia and bleeding disorders; and to be our community’s first choice in partnership to achieve their highest potential through empowerment, connection to their community and being part of the solutions that affect them the most, until a cure is achieved.

About Hemophilia of South Carolina

Hemophilia of South Carolina (HSC) is a 501 (C) 3 Non-Profit organization and is a Chapter of the National Hemophilia Foundation (NHF) and a Chapter Member of Hemophilia Federation of America (HFA). HSC was founded in 1973 by a group of parents interested in promoting awareness, providing group support, and assisting other national hemophilia organizations. The organization for 42 years existed as all-volunteer; providing programs and education, support, and advocacy for access to care at the state’s capitol. Today, HSC serves all 46 counties in the state, currently providing education and support services to over 900 individual members and their families in 38 counties. HSC provides the most current information and education in topics related to bleeding disorders, treatment therapies, insurance, and advocacy. Today, HSC has one full time executive director, a full time development and communications coordinator, and an advocacy consultant, but relies on a strong volunteer base of it’s board of directors and members. Without our volunteers, we could not serve our mission.

Results of the 2021 Member Journey Survey

HSC Annual Gratitude Report 2020 FINAL

Important Documents

• 2021 Resource Brochure
• HSC By-Laws
• HSC  Brochure
• 2020 990 Tax Return
• HSC 2020 Gratitude Report
• HSC 2020 Case Statement
• *All donations are tax-deductible and our Tax ID # is 23-7400632.

National and Local Affiliations

Hemophilia of South Carolina is a Chapter of the National Hemophilia Foundation www.hemophilia.org

Hemophilia of South Carolina is a proud recipient of five, 2019 NHF Chapter of Excellence Awards. The Partnership Chapter of Excellence Award is in recognition of our participation in shared initiatives, trainings, and programs of NHF. We are committed to the relevance and vitality of our national chapter network as we work together to improve the lives of the bleeding disorders community nationwide. We are also a proud recipient of the Programs & Services Chapter of Excellence Award in recognition of our organization’s commitment to serving individuals affected by bleeding disorders through education, community, care, and connection. Additionally we were recently awarded the prestigious Advocacy & Public Policy Chapter of Excellence Award by NHF in recognition of our commitment to advocacy and education initiatives both at the state and local level, aimed at improving the lives of those in the bleeding disorders community. Scoring in the top 15% of Chapters who participated in the review process, we are thrilled to have received these honors. We thank our legislators, treatment centers, stakeholders, families we serve, industry partners, and volunteers for helping us reach these great milestones. In addition, we were also awarded the Fundraising and Board Governance Chapter of Excellence Awards, receiving 5 out of 6 awards, and feeling the proud moment at the 2019 BDC!

Hemophilia of South Carolina is member organization of Hemophilia Federation of America www.hemophiliafed.org

In 2020, HSC was honored to receive the Chapter Spotlight of the Year award at the HFA Symposium.

Hemophilia of South Carolina is a registered non-profit organization of Greenville County and a member of the Greenville Chamber.

A Proud Member of the South Carolina Associations of Non Profit Organizations — Together SC