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On The Road with Community Engagements

Regional Outreach Dinner

Bringing Educational Community Connections Opportunities to You!

With community members in 39 of the state’s 46 counties, our efforts to support our community requires us to travel outside our home office location to best meet the needs of our members. When we take our education and support services on the road, we reach our community in their home towns which helps to ease travel times and distance for community activities. For community members in the same town, having dinner together while receiving education on bleeding disorders helps to provide additional support and opportunities for attendees to network and make connections.

We enjoy meeting our members in their home towns and we try our best to secure locations that serve as a center point for large participation. In 2020, due to the pandemic, we connected virtually with 14 educational programs. Dates, locations and educational topics come as opportunities are presented to us. Log in often to see what we have planned! To request an educational topic or supportive location, please feel free to contact us. Registration is required for attneding. We look forward to connecting with you soon!

2021 Community Connections Schedule

January

19th – School Stuff and Advocacy:  7:00 pm, Sponsored in partnership with Takeda (Virtually)

February

12th – YES: Young Families: Empowerment and Support Programming – Valentines Event: Caregivers / Parents Night Out: 6:30pm, Sponsored in partnership with CSL Behring (Virtual)

26thRare Disease Day Celebration, Family Feud: 6:30pm,  Sponsored in partnership with Octapharma (Virtual)

March

16th – Living Independently, Choices and Risk for Teens: 7:00pm, Sponsored in partnership with Takeda (Virtual)

25th – Laughing Through Stress: 7:00pm, Sponsored in partenrship with CSL Behring (Virtual)

April

6th – Constructive Conversations: Educational Community Connection Program: 7:00pm, in partnership with Pfizer (Virtual)

August

13th – A Joint Effort: Teaming Up for Joint Protection, Myrtle Beach – 6:30pm, Sponsored in partnership with Takeda

16th – Bleeds: How to Recognize and Respond, Summerville – 7:00pm, Sponsored in partnership with Takeda

October

12th – Emotional Health and Well Being: Exploring the Mind Body Connections, Greenville – 6:3pm, Sponsored in partnership with Takeda

14th – Columbia – PK + YOU, 6:30pm, Sponsored in partnership with Bayer