Research
MLOF – I’m the Key to Unlocking Hemophilia – National Hemophilia Foundation Video
Research Articles
Make a difference! Complete the NHF survey before January 22nd
Help us identify those areas that matter most for people with bleeding disorders and their families by taking a few minutes today to complete a short survey (Link) before January 22nd.
HTC Investigators Look at UDC Data on Females with Bleeding Disorders
The Hemophilia Treatment Centers (HTCs) Network Investigators, a group of researchers from several U.S. HTCs, recently published a study on disparities associated with bleeding symptoms, age at diagnosis and provider interventions for females with bleeding disorders....
uniQure Announces Hemophilia B Gene Therapy Program To Enter Pivotal Study With FIX-Padua Variant in 2018
~ AMT-060 with the FIX-Padua Modification (AMT-061) Demonstrates Substantial Increase in FIX Activity in Non-human Primates ~ ~ Plans to Initiate Pivotal Study with Enhanced AMT-061 in 2018 ~ ~ Achieves Alignment with FDA on Streamlined Clinical and Regulatory...
Novo Nordisk announces new data on psychosocial impact of people living with hemophilia B
Research Study Novo Nordisk announces new data on psychosocial impact of people living with hemophilia B Findings from the B-HERO-S study presented at the World Federation of Hemophilia 2016 World Congress PLAINSBORO, N.J., July 26, 2016 /PRNewswire/ -- Novo Nordisk...
Researchers Learn More about FVIII Origins
In breakthrough research, Rice University (RU) scientists have uncovered more about the cellular origins of factor VIII (FVIII), a protein that plays a critical role in the blood clotting process. The study paper was co-authored by research biochemist Nancy A. Turner,...
My Life, Our Future: Program Update
We are pleased to announce 12 new sites have received Institutional Review Board (IRB) approval to participate in My Life, Our Future, a nationwide initiative offering genotyping to people with hemophilia: Arizona Hemophilia and Thrombosis Center at Phoenix Children's...
My Life, Our Future: Program Update
We are pleased to announce two new pilot sites have received Institutional Review Board (IRB) approval to participate in My Life, Our Future, a nationwide initiative offering genotyping to people with hemophilia: Bleeding and Clotting Disorders Institute, Peoria, IL...
Genotyping for Progress in Hemophilia
My Life, Our Future Hemophilia is a genetic disorder that primarily affects men and boys. It is caused by a mutation in a gene that encodes instructions for making a clotting factor. The mutation interrupts the production of functional clotting factor protein, and as...