by admin | Jan 7, 2021 | Research News
We want to hear from you! What do you want to see in research? TAKE SURVEY: CLICK HERE Participate TODAY in a Community Survey on Bleeding Disorder Research Priorities We are working to define those areas of research for today that can make the greatest...
by admin | Jun 18, 2020 | All News
BioMarin is a global pharmaceutical company with more than 20 years of experience in developing medicines for rare genetic conditions. BioMarin is pleased to update the community regarding our ongoing gene therapy clinical trial program in hemophilia A....
by admin | Feb 28, 2019 | All News
Hemophilia of South Carolina Launches the 2019 Red Tie Campaign The Red Tie Campaign aims to advance the fight against inheritable bleeding disorders by raising funds for research, education, and advocacy initiatives. March 1, 2019 – More than three million Americans...
by admin | Jan 18, 2019 | Our Stories
My name is Lisa Bordelon. I am married to Kevin, retired MSgt., USAF and I have two young adult children, Ashley and Matthew. Both are diagnosed with von Willebrand Disease. Ashley has Type 1 Severe and Matt is Type 1 Mild. Ashley was not diagnosed until age four....
by admin | Jan 7, 2019 | Our Stories
My name is Aaron Smith. I am here tonight with my wife Brantley and two boys, Grady, who just turned three, and Logan, age one. We found out this past July that our son Logan has severe Hemophilia A. We have no known family history but we knew something wasn’t...
