2021 MAJOR EVENTS
Download the 2021 PDF Calendar of Events
All Programs at this time will remain virtual until further notice and a safe return to in person events are possible.
January
- 12th – Bleeding Disorders Industry Advisory Committee: 10:00am (BDAC) (Virtual Meeting)
- 14th – Blood Brothers Meeting: 7:00pm – (Virtual) (DrugCo partnership)
- 16th – Board of Directors 2021 Annual Strategic Planning Summit: 9:30am
- 19th – ALL Support Groups: Teens, Parents, Young Adults, Young Families YES- Educational Community Outreach, (Virtual) College & Scholarships, School Stuff, and Self Advocacy: 7:00pm (Takeda Partnership)
- 21st – Advocacy Coalition Call
- 26th – HSC Advocacy Ambassadors Quarterly Outreach, (Leg. Days Prep) (Virtual)-Rare Bill / Accumulator
- TBD – HTC Patient Advisory Board Committee Meeting (Virtual)
- TBD – South Carolina’s 39th Annual School Nurse Conference
February
- 11th – Blood Brothers Meeting – (Virtual) (DrugCo partnership)
- Informational Flyer
- 12th – YES: Young Families: Empowerment and Support Programming – CSL Behring Valentines Event: Caregivers / Parents Night Out -6:30pm (CSL Behring Partnership)
- 13th -Board of Directors Meeting
- 16th – Advocacy Days Prep Webinar – (Virtual)
- 18th – Advocacy Coalition Call
- 26th – South Carolina Rare Disease Day State Recognition Celebrated(2021 Rare Disease Day 2.28.2021)
March Bleeding Disorders National Awareness Month
- TBD – Awareness Celebration & Campaign Educational Event
- 1st– 5th – NHF Washington Days (Virtual)
- 11th – Blood Brothers Meeting – (Virtual) (DrugCo partnership)
- 9th – 11th – HSC’s Advocacy Training and Legislative State Advocacy Days (Virtual)
- 13th – Board of Directors Meeting
- 16th – Teen Support Group (Living Independently, Choices and Risks (Virtual) – (Takeda Partnership)
- 18th – Advocacy Coalition Call
- 25th – CARE: Compassionate Advocates; Resiliently Empowered Women’s Programming – (CSL Behring Partnership)
April
- 6th – Virtual Educational Community Connections Program (Pfizer Partnership)
- 8th – Blood Brothers Meeting (Virtual) (DrugCo partnership)
- 10th – Board of Directors Meeting
- 13th – Bleeding Disorders Advisory Committee (Industry) Meeting
- 15th – Advocacy Coalition Call
- 17th– World Hemophilia Day | Virtual Event
- TBD – Advocacy Ambassadors Quarterly Outreach (Virtual)
- TBD – HTC Patient Advisory Board Committee Meeting (Virtual)
- 23-24th – 2021 HSC – HTC Medical Symposium (Virtual)
May
- 8th – Board of Directors Meeting
- 13th – Blood Brothers Meeting (Virtual) Bro’s Cook & Bar-be-Que Event! (CSL Behring Partnership)
- 20th – Advocacy Coalition Call
- TDB – YES: Young Families: Empowerment and Support Programming
June
- 10th – Blood Brothers Meeting
- 11th– 12th– HSC Annual Meeting & HELLO Conference (Virtual / Hybrid)
- 12th – Board of Directors Meeting
- 17th – Advocacy Coalition Call
- TBD – Camp Courage (Prisma Health Upstate) Pleasant Ridge Camp, Marietta, SC
- TBD – Chapter Camp Days at Camp Courage
- HSC – CARE: Compassionate Advocates; Resiliently Empowered Women’s Programming
July
- TBD – Camp Burnt Gin (Wedgefield, SC)
- TBD – Chapter Day at Camp Burnt Gin
- 10th – Board of Directors Meeting
- 15th – Blood Brothers Meeting / or Overnight Retreat weekend (DTBD)
- 15th – Advocacy Coalition Call
- 24th – Chapter Camp Connections (Saluda Shoals Park, Columbia)
August
- 7th – 10th – HSC / HNC – Teen Retreat (Camp Canaan)
- 9th – Bleeding Disorders Advisory Committee Meeting
- 12th – Blood Brothers Meeting
- 14th – Board of Directors Meeting
- 19th – Advocacy Coalition Call
- 26th -28th – NHF Bleeding Disorders Conference (Denver)
- TBD – Advocacy Ambassadors Quarterly Outreach
- TBD – HTC Patient Advisory Board Committee Meeting
September
- 9th – Blood Brothers Meeting
- 11th – Board of Directors Meeting
- 16th – Advocacy Coalition Call
- 24th – 26th – Educational Family Camp (Myrtle Beach)
- TDB – YES: Young Families: Empowerment and Support Programming
- HSC – CARE: Compassionate Advocates; Resiliently Empowered Women’s Programming
October
- 1st – Par for The Clot Charity Golf Tournament (Greenville)
- 9th – Board of Directors Meeting
- 14th – Blood Brothers Meeting
- 21st – Advocacy Coalition Call
- 25 – 27th – HFA Symposium- Texas
- TBD – Teen Programming Support Group
- TBD – HSC VWD Retreat
November
- 6th – Turkey Trot 5K Walk / Run Annual Fundraiser (Columbia)
- 11th – Blood Brothers Meeting
- 13th – Board of Directors Meeting
- 18th – Advocacy Coalition Call
- 20th – Annual Advocacy Stakeholders Forum / Advocacy Ambassadors Quarterly Outreach, HTC Patient Advisory Board Committee Meeting
December
- 9th – Blood Brothers Meeting
- 11th – Holiday Winter State Meeting (Columbia)
- 16th – Advocacy Coalition Call