2021 MAJOR EVENTS

Download the 2021 PDF Calendar of Events

All Programs at this time will remain virtual until further notice and a safe return to in person events are possible.

 January

• 12^th – Bleeding Disorders Industry Advisory Committee: 10:00am (BDAC)  (Virtual Meeting)
• 14^th – Blood Brothers Meeting: 7:00pm – (Virtual) (DrugCo partnership)
  • Informational Flyer
• 16^th – Board of Directors 2021 Annual Strategic Planning Summit: 9:30am
• 19^th – ALL Support Groups: Teens, Parents, Young Adults, Young Families YES- Educational Community Outreach, (Virtual) College & Scholarships, School Stuff, and Self Advocacy: 7:00pm  (Takeda Partnership)
  • Informational Flyer
  • Presentation Flyer 
• 21^st – Advocacy Coalition Call
• 26^th – HSC Advocacy Ambassadors Quarterly Outreach, (Leg. Days Prep) (Virtual)-Rare Bill / Accumulator 
  • Informational Flyer
  • Meeting Agenda
• TBD – HTC Patient Advisory Board Committee Meeting (Virtual)
• TBD – South Carolina’s 39th Annual School Nurse Conference

February

• 11^th – Blood Brothers Meeting – (Virtual) (DrugCo partnership)
  • Informational Flyer
• 12^th – YES: Young Families: Empowerment and Support Programming – CSL Behring Valentines Event: Caregivers / Parents Night Out -6:30pm (CSL Behring Partnership)
  • Informational Flyer
  • Event Meeting Registration
  • Virtual Meeting Registration
• 13th -Board of Directors Meeting
• 16^th – Advocacy Days Prep Webinar – (Virtual)
• 18^th – Advocacy Coalition Call
• 26^th – South Carolina Rare Disease Day State Recognition Celebrated(2021 Rare Disease Day 2.28.2021)
  • Family Feud Bleeding Disorders Pizza Game Night for Families & Teens and Young Adults – 7:00pm (Octapharma Partnership)
  • Informational Flyer
  • Virtual Meeting Registration 

March Bleeding Disorders National Awareness Month

• TBD – Awareness Celebration & Campaign Educational Event
• 1^st– 5^th – NHF Washington Days (Virtual)
• 11^th – Blood Brothers Meeting – (Virtual) (DrugCo partnership)
• 9^th – 11^th – HSC’s Advocacy Training and Legislative State Advocacy Days (Virtual)
• 13^th – Board of Directors Meeting
• 16^th – Teen Support Group (Living Independently, Choices and Risks (Virtual) – (Takeda Partnership)
• 18^th – Advocacy Coalition Call
• 25^th – CARE: Compassionate Advocates; Resiliently Empowered Women’s Programming – (CSL Behring Partnership)

April

• 6^th – Virtual Educational Community Connections Program (Pfizer Partnership)
• 8^th – Blood Brothers Meeting (Virtual) (DrugCo partnership)
• 10^th – Board of Directors Meeting
• 13^th – Bleeding Disorders Advisory Committee (Industry) Meeting
• 15^th – Advocacy Coalition Call
• 17^th– World Hemophilia Day | Virtual Event
• TBD – Advocacy Ambassadors Quarterly Outreach (Virtual)
• TBD – HTC Patient Advisory Board Committee Meeting (Virtual)
• 23-24^th – 2021 HSC – HTC Medical Symposium (Virtual)

 May

• 8^th – Board of Directors Meeting
• 13^th – Blood Brothers Meeting (Virtual) Bro’s Cook & Bar-be-Que Event! (CSL Behring Partnership)
• 20^th – Advocacy Coalition Call
• TDB – YES: Young Families: Empowerment and Support Programming

June

• 10^th – Blood Brothers Meeting
• 11^th– 12^th– HSC Annual Meeting & HELLO Conference (Virtual / Hybrid)
• 12^th – Board of Directors Meeting
• 17^th – Advocacy Coalition Call
• TBD – Camp Courage (Prisma Health Upstate) Pleasant Ridge Camp, Marietta, SC
• TBD – Chapter Camp Days at Camp Courage
• HSC – CARE: Compassionate Advocates; Resiliently Empowered Women’s Programming

July

• TBD – Camp Burnt Gin (Wedgefield, SC)
• TBD – Chapter Day at Camp Burnt Gin
• 10^th – Board of Directors Meeting
• 15^th – Blood Brothers Meeting / or Overnight Retreat weekend (DTBD)
• 15^th – Advocacy Coalition Call
• 24^th – Chapter Camp Connections (Saluda Shoals Park, Columbia)

August

• 7^th – 10^th – HSC / HNC – Teen Retreat (Camp Canaan)
• 9^th – Bleeding Disorders Advisory Committee Meeting
• 12^th – Blood Brothers Meeting
• 14^th – Board of Directors Meeting
• 19^th – Advocacy Coalition Call
• 26^th -28^th – NHF Bleeding Disorders Conference (Denver)
• TBD – Advocacy Ambassadors Quarterly Outreach
• TBD – HTC Patient Advisory Board Committee Meeting

 September

• 9^th – Blood Brothers Meeting
• 11^th – Board of Directors Meeting
• 16^th – Advocacy Coalition Call
• 24^th – 26^th – Educational Family Camp (Myrtle Beach)
• TDB – YES: Young Families: Empowerment and Support Programming
• HSC – CARE: Compassionate Advocates; Resiliently Empowered Women’s Programming

October

• 1^st – Par for The Clot Charity Golf Tournament (Greenville)
• 9^th – Board of Directors Meeting
• 14^th – Blood Brothers Meeting
• 21^st – Advocacy Coalition Call
• 25 – 27th – HFA Symposium- Texas
• TBD – Teen Programming Support Group
• TBD – HSC VWD Retreat

November                                                                     

• 6^th – Turkey Trot 5K Walk / Run Annual Fundraiser (Columbia)
• 11^th – Blood Brothers Meeting
• 13^th – Board of Directors Meeting
• 18^th – Advocacy Coalition Call
• 20^th – Annual Advocacy Stakeholders Forum / Advocacy Ambassadors Quarterly Outreach, HTC Patient Advisory Board Committee Meeting

December

• 9^th – Blood Brothers Meeting
• 11^th – Holiday Winter State Meeting (Columbia)
• 16^th – Advocacy Coalition Call