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2021 First Support Group Event for Teens

Family Feud Bleeding Disorders – “Teen versus Young Adults”

February 26th at 7:00pm

Register here for the virtual event!

Informational Flyer

Join us for this fun virtual event geared for teens (and their families) and find out just how much you know about bleeding disorders. Bring the entire family for an evening celebration of the National Rare Disease Day, February 28, 2021. Enjoy a family night of pizza on HSC and a little bit of competition! It will be a great night of fun, community support, education and prizes!

Sponsored in partnership with Octapharma

OctaPharma

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“The Carolina Crew”

2020 Virtual Teen Camp, August 7-8, 2020

Register here by July 27th

(Look for your Camp in a Box to arrive shortly after)

Together Again!

Hemophilia of North and South Carolina annually provide a joint teen retreat for teen’s ages 13-18 years. This event is open for anyone ages 13-18 who has either a bleeding disorder or a sister, brother, or parent with a bleeding disorder. You may also invite a friend or sibling! This year, due to COVID – 19, we are once again joining up and will provide a two-day adventure of fun, fellowship, and education along with our friends at Victory Junction. Our time together will be provided virtually, and for those who attend this year’s teen retreat, you will be placed on the 2021 teen camp registration list. An educational component is included each year on topics related to independence, job and career preparation, advocacy training, and bleeding disorders education. Fun activities are also being planned to engage teens and their friends from across both states. Come spend a weekend with friends – new & old! Share your interests, passion, and ideas about how you can make a difference for yourself and in our community. Our program will include engaging activities including learning self-advocacy, sharing your story, and how to adapt to many other life-skills challenges! Hemophilia of South Carolina and Hemophilia of North Carolina are offering this program for our teens, their teen siblings, or a friend!

(Because we are using a virtual platform for this event, participants must be 13 years of age, or if they are close to 13 years (12+) their parents must be present while they are online in attendance). Please read the zoom policy release below:

ZOOM Privacy Policy and Disclaims: As with all HSC and HNC meetings, your personal information is secured only with the chapters. No personal information gathered or used by our organizations during the event will be shared with outside parties or vendors. We will endeavor to ensure that all online meetings are safe and secure to the best of our abilities. Chat logs, location data, activity data, video and audio, and other available information within the ZOOM Meeting platforms may be archived to ensure the safety of our participates. We will also control audio and video settings of meetings, sessions, and other communications on our systems for safety, your privacy, and ease of use.  By registering for the virtual teen session, you agree to the aforementioned and to our chapters photo and events waiver releases.  Please review the below link for additional information.

Photo and event release waiver (virtual or in-person)

REGISTER FOR TEEN RETREAT: Deadline July 27th

Register here!

Teen Camp Agenda 

Friday, August 7th

(On HSC’s Zoom Platform)           

6:00- 7:30pm                          Opening Virtual Camp Fire Arrival & Check- in. Welcome from Victory Junction, Hemophilia of  NC, and Hemophilia of SC. Various games and activities to help teens get to know one another and have some fun!

7:30pm                                     Dinner together (HNC /HSC will send gift card to purchase meal)

Saturday, August 8th

(On HNC’s Zoom Platform)

10:30am-12:30pm                Victory Junction will lead some fun games/activities, including a science experiment. Teens will also be able to choose from two breakout sessions: resume building or learning American Sign Language (ASL).

12:30pm                                  Break for Lunch on your own – (HNC /HSC will send gift card to purchase meal)

3:00pm-4:00pm                     Interactive Self-Advocacy Situational Life Scenarios with Hemophilia Federation of America.

7:00pm-8:00pm                     Closing Camp Fire 2020 with Victory Junction, including activities and discussion of what teens would like to see in 2021.

(HNC and HSC will be providing everyone who attends the event ($40 per person) with a DoorDash, GrubHub, or Uber Eats gift card. Details about receiving the e-gift card will be provided to teens who registers).

Be sure to register for this year’s virtual event so you will have a greater chance to join us for next year’s Teen Retreat when we return to Camp Canaan on August 7-10, 2021!

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2021 HSC-HNC Teen Retreat Location

Camp Canaan
3111 Sand Island Road
Rock Hill, SC 29732

www.campcanaan.org

Date

August 7-10, 2021

 

        HSC Logo

Hemophilia of North & South Carolina gratefully acknowledge the pledge of support from the following companies for the 2020 Virtual Teen Retreat:

2020 Sponsors

CVS LogoNovo-Nordisk-LogoCSLBehring-LogoGenetech LogoBayerHFA Logo

PROGRAM PARTNERS:

Advocacy programming is provided by Hemophilia Federation of America

 

Check out the fun we had in 2019 with the following videos!

June 29th

July 1st

July 2nd

Visit our Facebook

Public Outreach 2017

Learn more about who we are, what we do and how we support the bleeding disorders community of South Carolina.

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