Statewide Annual Meeting & HELLO Conference
HELLO – Helping Embrace Life’s Learning Opportunities
2020 “Virtual” Conference Theme
~ Which Way Do We Go~
June 12-13, 2020
Friday, beginning at 5:30 pm
Saturday, beginning at 8:30 am
Location: Your Home!
Registration deadline for conference box: May 22nd
Learn How To Use ZOOM To Join The HELLO Conference
Due to the COVID-19 crisis we have moved our Annul Meeting and HELLO Conference to an online platform. There was no other date available this year for us to postpone our meeting to for a later date at the Embassy Suites. We would like to thank the Embassy Suites and Conference Center in Greenville for their kindness in forgiving our contractual agreement without any penalties. We will return to the Embassy on June 11-12, 2021.
Hemophilia of South Carolina’s Annual Meeting has taken place for 47 years and the Coronavirus was not going to keep our chapter from honoring our chapter members and all we have accomplished together in 2019. We have chapter awards, scholarships, and new board members to introduce, and many learning opportunities to provide to our members, families, and friends. We hope our online ZOOM platform this year (forced upon us by COVID-19) will help us reach a broader audience and can provide the opportunity to bring those who have not been available to join the annual meeting due to distance, health, or age, come gather together with us in unity this year. We ask you to encourage your family and friends who are affected by bleeding disorders or just want to learn more to register and log in. Please join us and support the Chapter, your community, and our families and friends as we wait until we can all be together again! Registration is required with HSC for the conference in a box materials. Registration information to join the online virtual sessions are available in the link above.
HSC’s Statewide Annual Meeting and Educational HELLO Conference usually draws an average of 250 members from the South Carolina bleeding disorders community throughout South Carolina and our partners in care, treatment, and education services throughout the nation. Participants come together to share experiences, learn new information, receive valuable related education from local and national speakers, explore information on new treatment therapies and supportive services, and build upon a network of community support and friendship. The meeting is open to all HSC members, the bleeding disorders community of South Carolina and its affiliated members. Education is provided for all ages and bleeding disorders; parents, caretakers, teens, children and individuals. Von Willebrand Disease education is offered for our community members affected by vWD. Fun for the kids and informative for the whole family. This free event provides meals, hotel accommodations for qualifying participants, and childcare accommodation while space is available.
Friday Night Chapter Opening Event: Keynote Presentation: “The Paradigm Shift in Hemophilia Treatment” – Speaker – Dr. Robert Sidonio ~ Sponsored by Hemophilia Federation of America, with special guest Sharon Meyers, President and CEO, Hemophilia Federation of America.
Chapter Awards Ceremony
- Making a Difference Award
- Appreciation Award
- Pillar of Strength Award
- Legislative Advocate of the Year
- Volunteer of the Year
- HSC’s Scholarship Awards
- Board member of the Year
Saturday Educational Sessions: 8:30 am – 4:00 pm
Keynote Guest Presentation: Len Valentino, President and CEO of the National Hemophilia Foundation
- “Gene Therapy Basics: What You Need To Know” ~ Sponsored by The National Hemophilia Foundation
- “Let’s Talk About What Isn’t Talked About” ~ Sponsored by The National Hemophilia Foundation
- “Understanding Von Willebrand Disease” ~ Sponsored by Takeda
- “Adversity, Strength and Resilience” ~ Sponsored by Pfizer
- “Get ready for What’s Next” ~ Sponsored by Sanofi Genzyme
- “Teen Bleeding Disorders Kahoot” ~ Sponsored by The National Hemophilia Foundation
Teen Programming Sessions: Provided by the Hemophilia Treatment Center of South Carolina ~ Collaborative Bio: Julia Johnston and Sarah Bills
Julia and Sarah are psychology doctoral students at the University of South Carolina. They specialize in working with children and teens with chronic health conditions on issues related to stress and coping, school, and managing a medical condition. Sarah and Julia work alongside Dr. Jeff Schatz as part of Prisma Health’s Psychosocial Team. They are involved in research and programming related to supporting youth and their families. The Hemophilia Treatment Center and Prisma Health’s Psychosocial Team are pleased to announce a two-part teen programming series for the 2020 HELLO Conference.
Creative Coping with COVID-19
Join Sarah Bills and Julia Johnston for a 45-minute session about coping with COVID-19! During this session, you will complete an art activity while reviewing your coping efforts and learning new coping strategies. Connect with your peers!
Does Your Personality Match your Career?
What is your dream career? Does your personality match it? During this session, Sarah and Julia will have you complete an individual personality quiz. You will learn about your personality characteristics and what careers best match your strengths! Also, play a fun ‘get to know you’ game of Jeopardy!
Children Programming provided by Diplomat Specialty Infusion Group
Book Reading and Bingo
Ready for some fun interactive games with your friends? Melissa from Diplomat Specialty Infusion Group will provide some activities to get you engaged. This workshop will include “I Am Nate” book reading and bingo along with a scavenger hunt. We will discuss safety equipment, school environments, and family encouragement. Please have a pencil or crayon available and your smile. Looking forward to seeing everyone!
Learn about treatment therapies and support services and enjoy meeting our sponsors in a Pre-Zoom Conference practice session on June 5th!