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Statewide Annual Meeting & HELLO Conference

 

HELLO – Helping Embrace Life’s Learning Opportunities

 2021 Annual Meeting and “Virtual” Conference 

June 11-12, 2021

June 19, 2021

“Together…OUR Journey Continues”

 

WHERE: Your Home!

WHEN: Thursday, June 3, 7:00 pm – Pre-Conference Kahoot / Sponsor Preview

Friday, June 11, 5:30 pm – 8:00pm – Opening Night Event

Saturday, June 12,  8:00 am (Coffee hour, sponsor chat, open conversations platform)

Saturday Educational Session Day, 9:00am – 5:00pm

Saturday Advocacy for All Stages in Life, 9:00am – 4:00pm  (Advocates, Parents, Teens, Tweens, and Kids Day)

 

Register below to attend this educational and social event today!

 

Register Here Today!

Register here for Individual Educational Program Sessions (Coming Soon)

Informational Flyer (Coming soon)

2021  Hello Program (Coming soon)

Learn How To Use ZOOM To Join The HELLO Conference

By Phone Dial In

By Tablet or IPad, Smart Phone

By Laptop or Computer

Our 2021 Virtual Meeting

Due to the ongoing COVID-19 pandemic and for the safety of our members, presenters, and sponsors, we will be providing the 2021 Annual Meeting and HELLO Conference virtually again this year. We plan to return to the Embassy Suites in Greenville in 2022 on June 10-11. Hemophilia of South Carolina’s Annual Meeting has taken place for 47 years and provides the South Carolina bleeding disorders community throughout South Carolina the opportunity to come together and enjoy presentations of the Chapter’s annual awards, scholarships, introducing new board members, and attending educational learning sessions. We learned in 2020 that our online ZOOM platform (forced upon us by COVID-19) helped us reach a broader audience and provided the opportunity to bring those who have not been available to join the annual meeting due to distance, health, or age, the opportunity to gather together with us in unity. We ask you to encourage your family and friends who are affected by bleeding disorders or just want to learn more to register and log in. Please join us and support the Chapter, your community, and our families and friends as we wait until we can all be together again! Registration is required with HSC for the conference materials. Registration information to join the online virtual sessions are available in the link above.

Disclaimers: As with all HSC meetings, your personal information is secured only with the chapter. No personal information gathered or used by HSC during the event will be shared with outside parties or vendors. HSC will endeavor to ensure that all online meetings are safe and secure to the best of our abilities. Chat logs, location data, activity data, video and audio, and other available information within the ZOOM Meeting platforms may be archived to ensure the safety of our participates. We will also control audio and video settings of meetings, sessions, and other communications on our systems for safety, your privacy, and ease of use.  By registering for the virtual session, you agree to our photo and events waiver release. Please review the below link.

Photo and Events Waiver – Release Document   

What is being planned?

June 11 – Friday Night Chapter Opening Event

Keynote speaker:  Glenn F. Pierce, MD, PhD

Sponsored by the Hemophilia Federation of America

We will be taking a look at the journey of where we are now today in bleeding disorders treatment vs where we have been in our past and hear about Dr. Pierce’s personal journey.  

~ About Glenn Pierce, MD, PhD,

Currently Dr. Pierce serves on the World Federation of Hemophilia (WFH) Vice President Medical and WFH USA Board of Directors and National Hemophilia Foundation (NHF) U.S. Medical and Scientific Advisory Council. He is an Entrepreneur in-residence at Third Rock Ventures as well as a consultant for gene therapy and hematology biotech companies. He co-founded Ambys Medicines in 2018, a cell and gene therapy liver regeneration start-up, and serves as the Chief Medical Officer (CMO). Dr. Pierce retired from Biogen in 2014, where he led the R&D of extended half-life FVIII and FIX Fc fusions as CMO. He spearheaded the donation of 1 billion international units (IUs) and initiation of the humanitarian aid collaboration with WFH. Dr. Pierce also led the initiation of the My Life Our Future (MLOF) program to genotype >10,000 individuals in the US bleeding disorder community. Previously, Dr. Pierce served on the NHF Board of Directors and was President of the NHF. Dr. Pierce received an MD and a PhD in Immunology, and did his postgraduate training in pathology and hematology research. He has 30+ years of experience in biotech drug development in the areas of tissue regeneration and hematology, including hemophilia, beginning with Amgen and has been involved in the development of 5 approved products for hemophilia. He splits time between San Francisco and San Diego. Dr. Pierce was born with severe hemophilia A, and was cured in 2008.

Chapter Awards Ceremony

Presentation of HSC’s Scholarship Award Recipients

Chapter Yearly Awards

  • Appreciation Award
  • Making a Difference Award
  • Pillar of Strength Award
  • SC Legislative Advocate of the Year
  • SCHBDAC Advocate of the Year
  • SCHBDAC Ambassador of the Year
  • Virtual Spotlight of the Year
  • Volunteer of the Year
  • Board member of the Year

Saturday Educational Sessions: 9:00 am – 5:00 pm

Presentation Sessions –  with more to come soon!

  • Music Therapy with Tim Ringold, Sponsored by CSL Behring
    • This session will empower participants to reach for music when feeling stressed in life or work rather then harmful substances or digital distractions~

    ~ About Tim Ringold, MT – BC ,  Common Factors Professional Speaker

    Throughout Tim’s life, music has been a powerful balm – particularly during times of stress and pain. That’s why Tm loves working in rehab centers in Southern California helping teens and adults learn how to overcome depression, anxiety, trauma, and addiction with the help of music. In addition, he has spent a decade serving as a regional board member of the American Music Therapy Association, is a TED Talk speaker, husband, and father of three wonderful kids: Ali, Bella (who beat us all back to heaven in 2021), and Julian.

  • The Science Behind Gene Therapy, Sponsored by BioMarin
    • Understanding gene therapy and the science behind it ~
  • Emotional Wellness, Sponsored by Pfizer
    • An overview of how mental health impact the bleeding disorders community, what signs/symptoms to look for, and how to encourage dialogue with caregivers and health care providers~
  • The Importance of Advocacy in our Future and How To Get Involved, provided by HSC’s  Advocacy Coalition Members
    • Learn why it is important to become skillful in advocating for you and your family and how South Carolina’s Advocacy Coalition is a vital voice for our community~
  • von Willebrand Disease: A to Z
    • Join the VWD community and learn together all there is to know about VWD and how to become more connected to the HSC VWD community~

Learn about treatment therapies and support services and enjoy meeting our exhibitors and sponsors in a pre-conference fun and entertaining “Kahoot Challenge” on June 3rd and during our conference lunch hour exhibit! 

Premier Sponsors

                CSLBehring Logo


Platinum Sponsors

Accredo LogoSpark Logo


National Education and Organizational Support

NHF LogoHFA Logo


2017 Annual Meeting Program Book