Ladies Support Group
Hemophilia of South Carolina’s CARE Program exists to support and empower women and girls who are affected by a bleeding disorders whether they have been diagnosed as having a bleeding disorder, are a caretaker of someone with a bleeding disorder; child or spouse/significant other, brother or sister, or they themselves are carriers of a genetic bleeding disorder. Objectives of the program include but are not limited to:
- To empower and equip women with knowledge and support by learning from others with shared practical knowledge from personal experiences in a safe, warm and inviting atmosphere activity
- Helping to facilitate conversations on issues relating to being affected by a bleeding disorder and working within the group to find practical solutions for their everyday life situations
- Gain knowledge from participants and guest speakers about bleeding disorders and how to manage them in particular ways
- Empower women and girls to obtain the best medical care and supportive services and resources
- Build bonding relationships for future advocacy needs, support and friendships
- Help to facilitate and increase knowledge and awareness about the symptoms and treatment of bleeding disorders and share ways to encourage more awareness to the general public and healthcare professionals.
Join us for this virtual opportunity for support!
“Laughing Through Stress”
March 25 at 6:30pm
(Deadline to receive content box – March 15th)
Bleeding Disorders Awareness Month, Ladies Evening Night Out with HSC and CSL Behring
Join the South Carolina community ladies for a fun and interactive evening with moms and caregivers of loved ones diagnosed with bleeding disorders We will hear from Speaker Lori, a Common Factors Advocate with CSL Behring, as she shares about “Laughing Through Stress”. We will then take on a fun and meaningful bleeding disorders month project; Make One, Share One, and Give in support of those affected by bleeding disorders. We will celebrate and share milestones in our personal lives and within our bleeding disorders journeys.
Speaker: Lori Kunkel – Common Factors® Advocate
Caregiver – Sons and Granddaughter have Hemophilia A
Lori’s family motto is: Find laughter in every situation—especially the stressful ones. While hemophilia is a serious condition, Lori shares how she and her husband-maintained perspective by always trying to find humor when confronted with hemophilia-related stresses.
Bio: After the traumatic birth of her first child and his diagnosis with hemophilia A, Lori and her husband felt overwhelmed. Refusing to let their son’s diagnosis consume them, they leaned on the bleeding disorder community, medical books, and their healthcare team to learn all they could about bleeding disorders. Lori is now a proud mother of three sons with bleeding disorders who are all emergency medical technicians.