Resources
Here are some resources that may help you better understand bleeding disorders and provide some information to assist you and your family.
National Organizations
Company
Contact
Description
National Hemophilia Foundation
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: (212) 328-3700
Fax: (212) 328-3777
HANDI: NHF’s Info Resource Center
HANDI Phone: (800) 42-HANDI
HANDI Fax: (212) 328-3799
HANDI Email: handi@hemophilia.org
Website:
www.hemophilia.org

The National Hemophilia Foundation exists to support communities all over the United States
www.mylifeourfuture.org

My Life, Our Future is a nationwide campaign for progress in hemophilia. Leaders in our community have come together to offer a free genotyping test, so that you may gain a deeper understanding of your hemophilia today, while helping to advance the breakthrough treatments of tomorrow.
stepsforliving.hemophilia.org

Prevent Complications of Bleeding Disorders.

Victory for Women (V4W) is NHF’s health initiative to address the critical issues faced by women with bleeding disorders.
820 First St. NE, #720
Washington DC 200032
Toll Free: (800) 230-9797
Phone: (202) 675-6984
Fax: (972) 616-6211
Email: info@hemophiliafed.org
Website:
hemophiliafed.org
Highlights:
Patient Assistance Programs

Hemophilia Federation of America (HFA) is a community based organization that serves people with bleeding disorders and their families in the USA. With a broad mission to assist and advocate, HFA provides programs, services and policy education and support through its Member Organization affiliations as well as direct to consumers.
1425 René Lévesque Blvd. W.
Suite 1010
Montréal, Québec
H3G 1T7 Canada
Phone: +1 (514) 875-7944
Fax: +1 (514) 875-8916
E-mail: wfh@wfh.org
Website:
www.wfh.org
Additional Supporting Organizations and Resources
Company
Contact
Description
www.cdc.gov Facts
www.patientnotificationsystem.org
2323 Colorado Avenue
Turlock, CA 95382
Phone: (888) 633-4298
Website:
www.medicalert.org
www.patientservicesinc.org

Patient Services, Inc. (PSI) is the “ground breaking” 501(c)(3) non-profit, charitable organization of its kind. Over two decades ago, we recognized the importance of providing a “safety net” for patients with chronic illnesses who were struggling to keep up with expensive premiums and copayments.
65 Central Street
Georgetown, Massachusetts 01833 USA
Phone: 1 (978) 352-7657
Fax: 1 (978) 352-6254
Email: info@kelleycom.com
Website:
www.kelleycom.com
www.colkeen.org
1425 René Lévesque Blvd. W. Suite 1010
Montréal, Québec
H3G 1T7 Canada
Phone: +1 (514) 875-7944
Fax: +1 (514) 875-8916
E-mail: info@wingmenfoundation.org
Website:
www.wingmenfoundation.org
www.rarecoagulationdisorders.org
www.fwgbd.org