Resources

Here are some resources that may help you better understand bleeding disorders and provide some information to assist you and your family.

HSC’s 2021 Resource Pamphlet 

National Organizations

Description

The National Hemophilia Foundation exists to support communities all over the United States

My Life, Our Future is a nationwide campaign for progress in hemophilia. Leaders in our community have come together to offer a free genotyping test, so that you may gain a deeper understanding of your hemophilia today, while helping to advance the breakthrough treatments of tomorrow.

Prevent Complications of Bleeding Disorders.

Victory for Women (V4W) is NHF’s health initiative to address the critical issues faced by women with bleeding disorders.

Hemophilia Federation of America (HFA) is a community based organization that serves people with bleeding disorders and their families in the USA. With a broad mission to assist and advocate, HFA provides programs, services and policy education and support through its Member Organization affiliations as well as direct to consumers.

The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.

Additional Supporting Organizations and Resources

Description

The Patient Notification System is a free, confidential, 24 hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.

As a global charity, we focus on the well-being of others. We give you the freedom to live fearlessly, confident in the coverage we provide as the world’s most dependable medical identification and information network.

Patient Services, Inc. (PSI) is the “ground breaking” 501(c)(3) non-profit, charitable organization of its kind. Over two decades ago, we recognized the importance of providing a “safety net” for patients with chronic illnesses who were struggling to keep up with expensive premiums and copayments.

KEENAN FOUNDATION, INC. is a charitable organization dedicated to improving the health and well being of individuals and families living with chronic illnesses, with priority placed on those living with bleeding disorders.

To support individuals and community members with chronic conditions through physical fitness, fitness education, advocacy, financial assistance of physical rehabilitation, and compassion.