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Newly Diagnosed / Young Families’ Support Group

So… What Does YES Stand For

Hemophilia of South Carolina’s Young Families Empowerment and Support (YES) Program exists to provide a “Can Do” program and support group for families and their children ages 0-12 years who are affected by bleeding disorders. Often, parents may be told what their children can’t and will not be able to do many things. Our message is YES they can and will; with proper support, empowerment, education, advocacy, treatment, and access to care, families with young children with bleeding disorders can achieve positive outcomes and lives, lived to the fullest. Often too, parents naturally tell their children with bleeding disorders “no” for their health and safety. Our goal is to help families learn to manage their children’s bleeding disorders so it doesn’t define them. A peer support will begin to develop as parents share their wisdom and knowledge with other parents and provide strength and hope as they share experiences.

The YES Program helps newly diagnosed families connect to other members with younger children within the community who are confronted with some of the same situations learning the ins and outs of navigating life with a bleeding disorder. The program provides educational speakers, supportive services, and is always fun and informative set in a relaxing and inviting venue.

Join Us: “YES” for a special Valentines Weekend Caregiver Support Event

February 12th beginning at 6:30pm

Sponsored in partnership with CSL Behring 

Register online HERE to attend and receive your box of supplies!

Space is limited and registration is required by February 1st.

Program Information

Caregivers, Make Yourself a Priority!

It’s okay to say no sometimes, even as a caregiver to a child with a bleeding disorder. When Krissy begins to feel overwhelmed, she gently tells her kids that she needs a moment alone, which has also taught them that it’s okay to take a step back when they’re overwhelmed. Today, Krissy shares the importance of making time for yourself as a caregiver.

Speaker

Krissy M, Common Factors® Advocate

Caregiver – Son has Hemophilia A

Bio: Krissy finally got an answer to all of her son’s strange childhood ailments when he was diagnosed with hemophilia at seven years old. With no family history of the illness, the diagnosis came out of left field. Krissy wanted to make sure that hemophilia didn’t become an excuse for her son to get out of doing something, so after he learned to self-infuse at bleeding disorder camp, Krissy encouraged him to engage more during visits with his healthcare team. Krissy believes that tackling hemophilia as a family has helped her son find confidence.

Zoom Platform 

Register here for the ZOOM Platform

Come join Hemophilia of South Carolina and members of the community who have children ages 0-12 years diagnosed with bleeding disorders for a fun and informative support group activity, virtually on ZOOM. We will enjoy a brief supportive presentation from CSL Behring’s “Common Factors” followed by the fun and interactive Board and Brush activity all in the setting of community friends. Share YOUR knowledge with others and learn from members how they have adjusted to life with a bleeding disorder in the family. Meet community members and make lasting relationships. Enjoy an evening of fun and networking with your community. Sponsored in partnership with CSL Behring. Contact Sue at the Chapter – 864-350-9941 for questions!

 

Resources for Parents

Event Sponsor

CSLBehring Logo

Public Outreach 2017

Learn more about who we are, what we do and how we support the bleeding disorders community of South Carolina.

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