Newly Diagnosed / Young Families’ Support Group
So… What Does YES Stand For
The YES Program helps newly diagnosed families connect to other members with younger children within the community who are confronted with some of the same situations learning the ins and outs of navigating life with a bleeding disorder. The program provides educational speakers, supportive services, and is always fun and informative set in a relaxing and inviting venue.
Join Us: “YES” for a special Valentines Weekend Caregiver Support Event
February 12th beginning at 6:30pm
Sponsored in partnership with CSL Behring
Space is limited and registration is required by February 1st.
Caregivers, Make Yourself a Priority!
It’s okay to say no sometimes, even as a caregiver to a child with a bleeding disorder. When Krissy begins to feel overwhelmed, she gently tells her kids that she needs a moment alone, which has also taught them that it’s okay to take a step back when they’re overwhelmed. Today, Krissy shares the importance of making time for yourself as a caregiver.
Krissy M, Common Factors® Advocate
Caregiver – Son has Hemophilia A
Bio: Krissy finally got an answer to all of her son’s strange childhood ailments when he was diagnosed with hemophilia at seven years old. With no family history of the illness, the diagnosis came out of left field. Krissy wanted to make sure that hemophilia didn’t become an excuse for her son to get out of doing something, so after he learned to self-infuse at bleeding disorder camp, Krissy encouraged him to engage more during visits with his healthcare team. Krissy believes that tackling hemophilia as a family has helped her son find confidence.
Come join Hemophilia of South Carolina and members of the community who have children ages 0-12 years diagnosed with bleeding disorders for a fun and informative support group activity, virtually on ZOOM. We will enjoy a brief supportive presentation from CSL Behring’s “Common Factors” followed by the fun and interactive Board and Brush activity all in the setting of community friends. Share YOUR knowledge with others and learn from members how they have adjusted to life with a bleeding disorder in the family. Meet community members and make lasting relationships. Enjoy an evening of fun and networking with your community. Sponsored in partnership with CSL Behring. Contact Sue at the Chapter – 864-350-9941 for questions!
Resources for Parents
- NHF’s Steps for Living
- National Hemophilia Foundation
- Hemophilia Federation of America
- HFA’s Mom’s Blog: Infusing Love
- LA Kelley Communication, Inc.