Donate to HSC
Donate to HSC
Facebook
Twitter
Instagram

Professional Staff and Board of Directors 


Our Board of Directors are responsible for the governance of the organization and work closely with our staff. The board members and executive director meet monthly to discuss the direction, governance, programs, services, and support for the organization and its members. We accept applications at any time and review as new board positions become available. If you are interested in applying for a board position or have any questions, please download the application or contact the Chapter at: info@hemophiliasc.org.

Professional Staff:

Shelly Crisp

Suzanne Martin
Executive Director
Ex-Officio Board Member
NHF 2016 Award of Excellence, Advocate of the Year

Sue.martin@hemophiliasc.org

Sue resides in Greer, South Carolina with her husband. She has been in Chapter services for over 25 years since the diagnosis of hemophilia in her three sons, with no known family history. She has a degree in Health and Human Services / Child Development, and prior to her time in chapter services, she worked with the developmentally challenged for the state of California and was a small business owner for 17 years. Sue has led the organization to receive several national awards which includes being recognized as a Five-Star Chapter of Excellence of the National Hemophilia Foundation (NHF), 2016 NHF Award of Distinction in Communications – Website Design and Outreach Video, NHF 2019 Award of Distinction Health Education and John Indence, Award of Excellence – Bleeding Disorders Awareness month, and the 2020 Hemophilia Federation of America Chapter Spotlight Award. Sue is a member and adviser to the Chapter Services Organization (CSO), which represents over 45 bleeding disorders organizations in the US, and is a member of several working groups of the National Hemophilia Foundation. Sue has a strong passion for advocacy and access to quality treatment care, and is a leading member of the Chapter’s State Advocacy Coalition. “I love to see individuals find their voice and watch them grow within their bleeding disorders journey. I am blessed to call this community my extended family”. Sue enjoys boating and an outdoor lifestyle in her spare time with her husband, 5 children and 8 grandchildren.
Shelly Crisp

Greg Witul
Communications and Development Coordinator

gregwitul@hemophiliasc.org

 

Greg resides in Williamston, South Carolina with his wife and an ever-growing collection of house plants. Raised in the Finger Lakes Region of New York, Greg is a graduate of the University at Buffalo where he received a BA in Economic Geography and Niagara University where he received a MBA in International Business. In his fifteen years in the private sector, Greg has worked in a number of industries including technology transfer, economic development, publishing, and social media marketing. During the same time Greg was also involved in the voluntary sector sitting on boards of a library, a history museum, an economic committee, and a number of other cultural organizations. In 2020 Greg joined the organization just as the COVID-19 pandemic set in. “It has been an honor and privilege to work with this amazing community”. In his spare time, Greg enjoys hiking, hockey, historical research, and traveling.

Shelly Crisp

Jeremy Williams
Advocacy and Public Policy Consultant

Jeremy resides in Greenville with his wife and two children. He has been working with the Chapter as an Advocacy and Public Policy assistant and consultant for the past 5 years. He is also a member of the Chapter’s State Advocacy Coalition. Prior to working with the Chapter, Jeremy worked as a Senior Policy Analyst for The Council of State Governments in Atlanta, Georgia. Jeremy has a strong foundation in non-profit administration and personal commitment to public service and humanitarian work.

Shelly Crisp

Jim Lane
Accounting and Book Keeping

Jim has been the organization’s accounting and bookkeeping specialist for the past 6 years and is the owner of Lane Financial Services.

Shelly Crisp

Richard Wright
Website Development and Management

 

Richard is the organizations webmaster responsible for the maintaintance and design communications of the website. He is the owner of Blotter.com.

2021 Officers and Directors:

Shelly Crisp

Shelley Crisp
President
2017 – 2023
2021 Board Member of the Year
Moncks Corner, SC

 

Shelley resides with her husband in Moncks Corner, South Carolina, and has a young son with severe Hemophilia. Shelley is a Certified Occupational Therapy assistant. The family learned about their son’s diagnosis when he was 18 months old. They had no family history. In 2016, Shelley wanted to do more within the bleeding disorders community and joined the Chapter’s State Advocacy Coalition, and in 2017 she applied for a position on the Board of Directors. In her spare time, Shelley enjoys spending time with her boys and learning new crafts projects. “I have learned so much about bleeding disorders and have met so many wonderful people. Please feel free to reach out to me anytime”.

 

Shelly Crisp

Aaron Smith
Vice President
2020 Board Member of the Year
2019 – 2022
Columbia, SC

Aaron resides in Columbia, South Carolina with his wife and two sons. He works in the Information Technology department at BlueCross BlueShield of South Carolina and is currently an IT Manager. When their son was diagnosed with severe Hemophilia, the Smith’s decided to get involved with the Chapter. With no known family history, the Smith’s focused on learning as much as possible and being engaged in advocacy. Knowing that their experience has been drastically different than those before them, they have devoted themselves to ensure families affected by bleeding disorders can continue to obtain the help and resources needed to live in their new normal life. When not working or in Chapter events, Aaron enjoys spending time with his family, doing anything outdoors, and fixing things around the house.

 

Shelly Crisp

Eric Dunton
2nd Vice President
2019 -2022
Spartanburg, SC

Eric resides in Spartanburg, South Carolina and was born with hemophilia. He works in sales and logistics with a local oil and gas company, and is a graduate of the University of South Carolina. He is currently engaged to his fiancé and in their free time they enjoy spending time with their dogs, going to the beach, and trying out new restaurants.

 

Shelly Crisp

Cristal Day
Secretary
2016 – 2022
Easley, SC

Cristal resides in Easley, South Carolina, is a lifelong resident of the Upstate. She has been teaching since 2006, and is currently a 3rd grade teacher. She is the mother of three amazing children. Her only son has severe Hemophilia and both her daughters are carriers. She is a symptomatic carrier as well. Her father had Hemophilia and died during the 80’s due to complications. Cristal serves as the Chapter’s State Advocacy Coalition Chairwoman. She has a desire to advocate for the bleeding disorders community everywhere she goes.  In her spare time, she loves to travel with her family on trips.

 

Shelly Crisp

Patricia Tucker
Treasurer
2016 Board Member of the Year
2013 (no term limits)
Clinton, SC

Patricia resides with her son who has severe hemophilia in Clinton, South Carolina. She works in accounting. She has been associated with the Chapter as a member most her life. Her father had hemophilia and passed in 2018 at the age of 74, and was involved in one of the earliest gene therapy trials. Patricia has a strong desire for service and has served on the Board of Directors as treasurer for 8 years. She has a large family, many who are also affected by severe hemophilia. Patricia enjoys camping and sharing time with her family. 

 

Shelly Crisp

Wendy Legrand
2019 Board Member of the Year
Member at Large
2017 – 2023
Summerville, SC

Wendy resides in Summerville, South Carolina with her husband and young teenage son who has severe hemophilia. She works within the Urology healthcare field. The diagnosis of hemophilia was a surprise to Wendy as she had no family history of bleeding disorders. “It wasn’t until his diagnosis that we found out that I’m a symptomatic carrier as well as my mother, who has mild VWD”. Wendy and her family love attending the local Stingray hockey team on the weekends and their favorite Clemson football team. Wendy loves meeting new members within the community and reconnecting with old friends. 

 

Shelly Crisp

Robert Butler
Member at Large
2020 – 2022
Gaston, SC

Robert resided in Gaston, South Carolina and lives with severe hemophilia. He has a beautiful wife and 4 children.  Robert became involved in the chapter after learning the importance of being involved and has a strong desire to unite the seasoned men within the bleeding disorders community. Robert heads up the Chapter’s Blood Brotherhood Program while serving on board.   Robert has a background in art and graphics and enjoys spending time with his kids in his spare time.

 

Shelly Crisp

Dr. Joey Krakowiak
Member at Large
2021 – 2023
Greenwood, SC

Joey resides and works as a family doctor in Greenwood with his wife and two children. Joey has a 1-year-old son with severe hemophilia and a 4-year-old son not affected. He serves on the board to advocate for his son and others with bleeding disorders so everyone can have the appropriate treatment and care they deserve. Joey enjoys hiking, running, bowling, rowing, board games, and spending time with his family.

 

Shelly Crisp

Ursula Sagot
Member at Large
2021 – 2023
Lexington, SC

Ursula resides in Lexington with her husband and 3 daughters. She is new to the board this year and is excited to be a conduit for the Spanish speaking members of the South Carolina Bleeding Disorders community. Ursula and her family relocated to the US from Costa Rica 6 years ago and are grateful to receive quality care for their family which is affected by von Willebrand Disease. Ursula is excited to unite the VWD community.

 

Shelly Crisp

Christine Evans
Member at Large
2021 – 2023
Columbia, SC

New this year to the board, Christine and her family reside in Columbia and relocated many years ago from their home country of Kenya. Christine has been a long-time member of the Chapter with family affected by severe hemophilia. She works as a Registered Nurse within the Mental Health field and has a strong desire to improve the mental health needs of the Bleeding Disorder community.

 

Shelly Crisp

James Whitmire
Member at Large
2021 – 2023
Irmo, SC

New this year to the board, James and his wife reside in Irmo, South Carolina. James has a daughter that currently attends Georgia State University as a doctoral candidate. He has a family history of Hemophilia with his maternal Grandfather, 2 brothers, nephews, and cousins that lived with severe Hemophilia. Within the Hemophilia community, James participated in an Ambassador Program that focused on improving access to care and diversity. He gained experience and exposure in understanding the challenges that individuals living with Hemophilia face each day. James would like to help with the outreach programming within the community and engagement. Over the past 25 years, James has served as President of his community’s HOA, Mentor with Richland /Lexington School District 5, Chairman of Richland/Lexington Airport District, and Managing Partner of Integrity Tax & Bookkeeping in Columbia. In his spare time, he enjoys traveling and golfing as regular as possible.

 

Shelly Crisp

Cedric Jordan
Leader in Training (LIT)
Member at Large
2020 – 2022
Effingham, SC

Cedric is a Leader in Training (LIT) on the Board of Directors, experiencing the work of board leadership. He resides in Effingham, South Carolina. He is currently a sophomore attending Limestone University and studying to attain a bachelor’s degree in Business Administration with a concentration in Economics, and minor in Healthcare Administration. He loves traveling in the mountains, watching documentaries, and meeting new people.