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2021 Educational Family Camp & Adult Retreat

Keeping It Coastal – “A Family Reunion”

September 24 – 26, 2021

We are excited to welcome you to come spend time together with the bleeding disorders community members throughout South Carolina for our Annual Educational Family Weekend and Adult Retreat.  We are working hard to provide the same weekend experience we have all come to love, allowing many opportunities for connecting while remaining safe during these very trying times. We will be having educational and supportive sessions for families, adults, caregivers, advocates, and teens for individuals affected by all bleeding disorders including hemophilia, VWD, other rare bleeding, and platelet disorders. We invite you to enjoy a wonderful time for connecting and learning with our community. We are currently monitoring the COVID -19 concerns and taking all precautions and protocols to mitigate risks. Please read all information on our website before registering. We welcome you to join us!  Please register  today!

COVID 19 MITIGATION POLICY AGREEMENT WAIVER

COVID 19 POLICY AND PROCEDURES MITIGATION RISK DOCUMENT

Photo and Expectation Release Form

Downloadable Registration and Invitation here!

Register online here! 

This event is NOW full. The registration is closed. You may contact the chapter to be put on a waiting list should someone cancel.

A $25.00 non – refundable registration fee per household is due at time of registration. The registration fee will be donated to your STEPs for Bleeding Disorders Registration fees to attend this fundraiser on November 6th, or it will be donated to the STEP for Bleeding Disorders general fundraising goal in the family / individual name. Financial Assistance Scholarships are available to those in financial need. A request must be made to the chapter.

Registration Deadline Date: August 27, 2021

Privacy Policy; In person and Online Platform Disclaimer: As with all HSC meetings, your personal information is secured only with the chapter. No personal information gathered or used by HSC during the event will be shared with outside parties or vendors. BDASC will endeavor to ensure that all online meetings are safe and secure to the best of our abilities. Chat logs, location data, activity data, video and audio, and other available information within the ZOOM Meeting platforms may be archived to ensure the safety of our participates. We will also control audio and video settings of meetings, sessions, and other communications on our systems for safety, your privacy, and ease of use.  By registering for the virtual event, you agree to our photo and events waiver and Zoom policies and disclaimer release. 

 Schedule of Events

Virtual Program

Quick Look Agenda

Join us live Saturday September 25th from 9:00am – 12:00pm

Log in here and VIRTUALLY join the meeting!

FRIDAY: September 24th 

4:00pm – Hotel Check in and Chapter Welcomes, Open Exhibit Halls

6:00pm – Opening Remarks, Group Ice Breakers

6:30pm – Dinner Buffett

7:30pm -8:30 pm – Dinner Presentation

  • Do What Moves You: Staying Active!

8:30pm – Free Time, Community Connections

 

SATURDAY: September 25th

7:00am – 8:30am – Infusion Class, Open Exhibits

7:30am – 9:00am – Breakfast Buffett Opens

9:00am – Group Photo on the Lawn

(Due to COVID 19, this year all families will remain in their family pod- with their kids and teens for educational sessions- no childcare is being provided)

9:30am – 10:30am – Educational Sessions #1

  • Advocacy with Access to Care and Treatment For All
  • KaHoot IT and BELCH (for Teens) Bringing Elevated Learning with Competitive Humor

11:00am – 12:00pm – Educational Sessions #2

  • Emergency Rooms: Care and Treatment for Bleeding Disorders
  • M – POWERED: Giving Voice to Your Strenght
  • Heart Health, Strokes, and the Risk Factors
  • BINGO Mat Challenge (for Teens)

12:00pm – 1:30pm- Buffett Lunch, Exhibit Hall Opens

1:30pm – 4:30pmFree Time Enjoy the venue amenities: Pool time, Beach, Walking Paths

2:00pm – Group Sand Castle Contest on the beach (hotel private beach area)

4:30 – 5:30pm – Final Exhibit Hall Opportunity

5:30pm – 9:00pm – Dinner and Entertainment ~ By the Sea – Poolside Dinner Buffet (Marina Promenade)

6:00 – 7:30pm Dinner Buffet Poolside

SUNDAY: September 26th

7:00am – 8:30am – Infusion Class

7:30am  – 9:00am – Breakfast Buffett Opens

8:45am – STEP for Bleeding Disorders Kick-off Fundraiser Session

9:15am – Educational Sessions#3 – Gratitude Nation

10:00am – 11:00am – BDASC Community Breakout Connections ~ Round Tables

10:00am – VWD Educational Conversations Session

11:00am – Hotel Check Out

12:00pm – Closing Remarks

Venue:

Marina Inn at Grande Dunes

8121 Amalfi Place, Myrtle Beach, SC.

http://www.marinainnatgrandedunes.com/

About Hotel Rooms and Check in:

The hotel check in is at 4:00pm on Friday, September 24th.  At check in, you will be asked to provide your driver’s license and a credit card for any hotel incidentals which they will place a deposit hold on, usually around $50.00 per night, until you check out. BDASC is ONLY picking up your room cost and all tax, and all meals provided with our group at the scheduled times. We will finish up with our scheduled educational sessions at 11:00am on Sunday, September 26 with a box lunch provided to all attendees. You are also free to stay and mingle with members at the hotel during lunch. We must be checked out of our rooms by 11:00am or BDASC will be charged additional fees. Once you check out, you may leave your belongings in your car and enjoy the rest of the day at the hotel if you choose. If you have a financial hardship, please contact the Chapter before registering for scholarship accomindations information.

Hotel Acconindations & Amenities:

Valet Available 24 hours

Morning paper, cookie and punch served at 3:00pm

Chairs and umbrellas set up 9-5pm, Sat-Sunday on the private beach with shuttle service available 9:00-5:00pm

Private Balcony with Sweeping Water Views of the Waterway/Golf Course or the Poolscape/ Marina. Large, Luxuriously Appointed Travertine Tile Bathrooms, Separate Glassed In Shower with Relaxing RainShower Heads, Tommy Bahama Upscale Amenities, 300 thread count imported cotton bed linens, 47’ LCD HDTV’s with Premium Channels, Lighted Makeup Mirrors, (2) Cotton Bath Robes, Coffee Maker, Hair Dryers, WiFi (included), Ironing Board/Iron, In-room Safe, Dual Phone Lines and Voicemail, Mini or Full Fridge (varies by room type), Washer/Dryer in 2/3 Bedrooms Suites only, Full kitchens in 2/3 Bedroom Suites only.

Grande Guest Rooms The Grande Guest Room is an exceptionally oversized guestroom unlike any other resort in Myrtle Beach, SC. These spacious Myrtle Beach hotel rooms are 435 square feet with a balcony view of the pool/ marina or waterway/golf course. Bathrooms feature travertine tile floors and countertops with a spacious, separate glassed in, tile shower. Choices include one king or two queen beds and are perfect for couples or a small family of 3 or 4. Four of these rooms are handicap accessible.

Two Bedroom Suites This extensive Myrtle Beach hotel condo provides over 1,200 square feet of comfort with 1 king in one bedroom and 2 queens in the second bedroom is perfect for a Myrtle Beach family vacation. Amenities Include fireplace, full kitchen, dining area, living room with sleeper sofa, two full baths, washer/dryer and balcony with exceptional views and much more! Will comfortably accommodate up to 8 occupants. Two of these condos are handicap accessible

 

What is the Family Camp – Adult Retreat?

This annual recreational and educational event is available to individuals and families who either have a bleeding disorder, are carriers of a bleeding disorder, or have an immediate family member living in the same household diagnosed with a bleeding disorder. Our Family Camp and Adult Retreat is held in the Lowcountry over a three-day weekend and provides education and support to our community members who live in this region while also providing all members a coastal venue experience. The Family Camp and Adult Retreat provides community members with an extended opportunity to connect with others who are experiencing the same journeys while living with a bleeding disorder. Participants learn that they experience similar situations living with bleeding disorders, yet in different ways. For children and teens, they connect in a way that is unique to them; knowing they are not the only one with a bleeding disorder, and for a brief time, they can connect and forget what brings them to camp. They are among friends who just “get it”. Oftentimes, they make lifetime friendships. For the older adults, it is a special time to reconnect and find support in sharing their experiences and providing comfort to one another in friendship. Families leave with a renewed feeling of community and empowerment knowing they are not alone.

What do you get out of it?

We provided educational opportunities, empowerment, group activities, and supportive family fun connections with members of the South Carolina bleeding disorders community. Family Camp is attended by approximately 225 members and supportive affiliates; such as, guest speakers, national organizations, and healthcare / Industry representatives who are affiliated with the bleeding disorders community. Educational exhibit hall opportunities are offered for participants throughout the weekend to provide informational materials and one-on-one conversation opportunities on the most updated treatment therapies and support services.

Family Camp Photo Booth

The weekend is free of charge with a small reservation deposit. All meals, lodging, and activities are included. Space is limited and registration with HSC is required. Notification will be sent once an application is accepted.  Applications are accepted on a first come / first serve basis, and a need-based weighted selection process will be implemented if we cannot accommodate all eligible applications. Come join us, register today, and “Keep it Coastal”.

The Moby Dick Sponsors

 

Bayer    TakedaGenetech LogoCSLBehring LogoCVS Logo                  Pfizer

The Great White Shark Sponsors

 

Sparktx     Accredo Logo         

 

 

                        

 

 

Novo Nordisk Logo                            Sanofi Genzyme

 

 

Educational and Recreational Sponsors

 

CK-Colburn-Keenan-Foundation-Logo HFA Logo    NHF Logo